The drug itself is called Voranigo (Vorasidenib). It was approved by the FDA in August to treat brain tumors. Since starting the pill a few months ago, every time I get the pills delivered, the price lines make my head spin.
Edit: want to add that the savings card saved me like $400, so that’s something right?
Edit 2: wanted to add further context. This is a targeted inhibitor pill that matches my mutation. Ideally I will take this for the rest of my life. More likely I will take it until it doesn’t work. This type of chemo doesn’t kill the cancer, but keeps it from growing further. Every time I see those prices, it’s kind of a lot because I’m reminded that my husband has to work a job he hates for me to be on his high premium health insurance since I resigned from my job as an attorney earlier this year. My seizures got worse and it affected my ability to help clients. It’s a complicated mix of feelings tbh.
(Hopefully) Final edit: woke up to an overwhelming amount of comments/messages. Sorry I realistically cannot get back to everyone. Thank you for the overall kindness shown here. Even though it’s the internet, it strangely makes me feel less alone in this. Thanks, y’all.
glioglio on January 18th, 2025 at 00:08 UTC »
The drug itself is called Voranigo (Vorasidenib). It was approved by the FDA in August to treat brain tumors. Since starting the pill a few months ago, every time I get the pills delivered, the price lines make my head spin.
Edit: want to add that the savings card saved me like $400, so that’s something right?
Edit 2: wanted to add further context. This is a targeted inhibitor pill that matches my mutation. Ideally I will take this for the rest of my life. More likely I will take it until it doesn’t work. This type of chemo doesn’t kill the cancer, but keeps it from growing further. Every time I see those prices, it’s kind of a lot because I’m reminded that my husband has to work a job he hates for me to be on his high premium health insurance since I resigned from my job as an attorney earlier this year. My seizures got worse and it affected my ability to help clients. It’s a complicated mix of feelings tbh.
(Hopefully) Final edit: woke up to an overwhelming amount of comments/messages. Sorry I realistically cannot get back to everyone. Thank you for the overall kindness shown here. Even though it’s the internet, it strangely makes me feel less alone in this. Thanks, y’all.
SpaceGirl- on January 18th, 2025 at 00:26 UTC »
Wishing you the best!
Head_of_Lettuce on January 18th, 2025 at 00:49 UTC »
I’ve had similar experiences with my autoimmune medicines. Wishing you the best and I hope the medicine is helping.